February 9, 2009
Related Posts
No related posts3 Comments »
RSS feed for comments on this post. TrackBack URI
Leave a comment
You must be logged in to post a comment.
RSS feed for comments on this post. TrackBack URI
You must be logged in to post a comment.
Detox Diet Tips
Posted by courtney
im sorry i nev herd of that desease or whateva it id but i think u shood go to ask.com and ask about it ask.com is the best search engine!! =]
Comment by courtney — February 13, 2009 @ 5:23 am
Be very careful. Many of these groups promote “scientific” facts that are not following strict protocols. You will have all the fillings replaced, thus weakening your remaining teeth, sending you into a cycle of repairs for the rest of your life. A friend of mine in her thirties was diagnosed with multiple sclerosis, and had all of her fillings replaced, not very well I might add. She was promised that her symptoms will disappear with the removal of her amalgam fillings. At that point she went downhill fast. Do I turn around and say that removal of all her fillings increased the rate of multiple sclerosis deterioration? She passed away last year. Do I say that removal of her amalgams caused this? I’m too much of a scientist to fall into that trap. Please be careful with what some of these practitioners spout and promise. The consequences may not be worth the grief and may cost you a lot of money for little or no result.
Comment by burtybear — February 16, 2009 @ 5:07 pm
Henderson wrote:
>The Wrights/Autism Speaks are treading water with everyone and everything… they are trying to build a "big tent" and are doing an amazing job at that.>
A ‘big tent’? Who do they hope to include under this tent besides the parents of those children who can’t speak for themselves?
Please don’t talk to me about AS and their ‘big tent’. As I understand it, the term means that all kinds of people with all kinds of viewpoints are welcomed. The last time I was at a walkathon I was welcomed enough to have been given a table. I thought that that meant that things were changing. But given what I’ve heard publicly since that day, from AS, it does not seem to be the case. By ‘publicly’ I mean on cable television, on my radio, in major newspapers and magazines. All I’ve heard is the same old you-know-what. “It’s a mystery.” I heard these very words from one of Christians grandparents on MSNBC in the early days of autism awareness month. Until I hear somebody from AS on my television or my radio during prime time news (in between pharmaceutical commercials) saying that there is a great deal of evidence that vaccines are harmful, or until I receive a public apology from the local president of AS saying that she is sorry that she tried to have me arrested simply for standing on a public sidewalk politely asking people if they would like information about vaccine safety—until one of these things happens I will have no reason to believe that AS is working toward the same goals that parents who believe that their children suffer from vaccine damage and not autism are working toward.
Henderson wrote:
>They absolutely cannot come out and say that vaccines cause autism (or any other environmental trigger).>
Why not? I understand why they cannot. I would like to hear YOU explain it to the rest of us.
Henderson wrote:
> Silence is SLOW… has to be well designed, corroborated, etc. Our n=1 studies are telling, but they are ultimately meaningless. WE NEED Autism Speaks (and ARI for that matter), to run well designed peer reviewed university journal articles. The quicker the better. >
There is a difference between slow and careful, and slow because people are deliberately obstructing progress and the free flow of information.
How many children have been lost to full blown autism in the four or five years since I’ve heard from so many parents and doctors and scientists and journalists, on the internet, that vaccines might be harmful? In those four or five years I’ve not heard one word from the grandparents about vaccines. I’ve heard from Katie, but Katie doesn’t represent AS. Or does she? In all of those years I haven’t expected that anyone would come on my nightly news programs and (in between pharmaceutical commercials), say “Oh look! Vaccines cause autism!” But I don’t think that it’s too much to expect that when Brian Williams is on NBC reporting about thimerosal, and the label is shown, I don’t think that it is too much to ask that they don’t crop out the picture, on the label, of the skull and crossbones. It is flabbergasting to me that this doesn’t seem to bother Bob or Suzanne at all.
Henderson wrote:
>It is flabergasting to me that in 2004 (when I entered this world)… we were the only ones saying our kids are the canaries in the coal mine (environmental triggers of whatever sort). NOW THIS IS MAINSTREAM - in five short years… THANKS to Autism Speaks.>
Who are you referring to when you say ‘we’? As in ‘we were the only ones saying our kids are the canaries in the coal mine’. I have been saying this since 2004, and I do not consider myself in any way affiliated with AS. I have not been saying anything quite like ‘environmental triggers of whatever sort’. I have been saying that vaccines are likely a very significant contributing environmental factor—perhaps the most important environmental contributing factor. I have heard nothing at all about environmental factors, publicly, from AS. Please don’t tell me that if I go to Fair Autism Media and listen to Katie, that I will see that I can thank AS for raising awareness about vaccine issues. It’s been my understanding that Katie doesn’t represent AS. Or does she, now? It’s been my understanding that her parents represent AS. If Katie represents AS, why is it that in the first days of autism awareness month, when I turned on MSNBC, it wasn’t Katie who I heard speaking about autism, but her parents?
It’s not what an organization says that matters, it is what it does, or at the very least it is what they say PUBLICLY. And publicly I’ve seen nothing from AS that would lead me to believe they have much interest in convincing anyone, let alone a state legislature or a health insurance company, that it might be a good idea to look into vaccines as a cause of autism, or that it might be a good idea to look at the treatments that parents who’ve said they believe their child was harmed by vaccines are claiming are helping, significantly, their child.
Perhaps I’m just not paying enough attention. Perhaps I missed it. Perhaps someone else turned on their nightly news and (in between pharmaceutical commercials), heard Bob and/or Suzanne broach the subject of vaccine damage, or diet/nutritional treatments or chelation as a treatment for autism.
I recently wrote a letter to Monica Robins of WKYC TV here in Cleveland, when she was being honored at a recent AS benefit here. I asked her why there hasn’t been a single story about vaccine damage and autism on the station, and she replied to me in an email that she has done them. I cannot find them anywhere. Wouldn’t there be some archives kept somewhere of them? I wrote her back and I asked her to please help me out and show me what she’s done, and I might as well have been talking to a rock. No reply. If the grandparents have done more than speak to state legislatures in an attempt to insure insurance coverage for a very expensive treatment that most parents I’ve spoken with have found only marginally helpful, I don’t know what it is. Enlighten me please. If they’ve done anything to break the code of silence, what have they done? Their daughter has spoken, but we don’t hear her on the main stream media. She might be proud of them, but I don’t see how I can be.
Yes, progress has been slow, I think the parents of the children who’ve been lost to full blown autism in the most recent years—the years when it shouldn’t have happened because there were too many people who should have known better—I think that they are all too aware of this.
Henderson wrote:
>If you have any doubt about the org… go to Fair Autism Media and see the Katie Wright/David Kirby interview… it takes 30 minutes… Well worth the time. Katie explains who the real jerks are (NAAR), now reincarnated into ASF.>
The real jerks, in my opinion, are those who won’t speak their mind publicly about what they truly believe.
Henderson wrote:
>GO WRIGHTS GO! I wish you were my parents (not that they aren’t supportive. "that’s interesting honey", when they aren’t playing golf or playing bridge). To imagine.. the Wrights were soon to retire and instead have done nothing short of revolutionized our world (and they have to keep US at arms length - and we just have to accept and UNDERSTAND that). >
I can understand why it might be easier to speak for the parents of autistic children at all, now that Bob is about to retire. I don’t understand what they have done to revolutionize the lives of parents who believe their child was lost to vaccine damage. I don’t understand why they have to keep us at arms length. I find that an odd way of describing trying to have someone arrested, by the way. They tried to have me arrested simply for standing on a public sidewalk politely asking people if they would like information about vaccine safety. I was harassing no one and I was threatening no one. Not Bob or Suzanne personally, but the local president of AS. She tried to have me arrested simply for politely asking people if they would like information, and when I wrote to the parent organization about this I got no reply.
Given my own experiences with AS I would have to say that ‘keeping us at arms length’ is a bit of an understatement.
I cannot understand this—this necessity for ‘slow silence’, this keeping the truth at arms length. I can’t understand it and I don’t accept it. Why should the fact that the grandparents of Christian Wright accept these things sway me to feel otherwise?
Henderson wrote:
>In organizational theory - we are all members of "Autism"… we (warrior parents) are advocates for our truth… that’s our job. Autism Speaks job is to try to listen to EVERYONE in the big tent. >
Autism Speaks does much more than listen. They have a considerable amount of money and a considerable amount of influence, as is obvious by the fact that Bob is speaking to the NJ legislature. As far as I’ve seen they haven’t used any of that influence to help those who believe that their child was vaccine damaged. It’s a good thing that they’re working toward recognition that children with autism are as deserving of insurance coverage as any other child. But I don’t see them working at all toward doing anything to counter the influence of the government health officials, or of the vaccine makers, or of the main stream media’s incessant refusal to cover this issue fairly.
To make the claim that children with autism are as deserving of health insurance benefits as any other child seems to me to be obvious—a complete no-brainer. It’s as obvious as saying that the sky is blue or that the sun will rise in the east. I don’t understand how this makes one a ‘warrior’.
Comment by Jerry — May 23, 2009 @ 3:54 am